Satisfaction with care: a study of parents of children with congenital heart disease and parents of children with other diseases

dc.contributor.authorLawoko, Stephen
dc.contributor.authorSoares, Joaquim J.F.
dc.date.accessioned2022-05-25T10:39:39Z
dc.date.available2022-05-25T10:39:39Z
dc.date.issued2004
dc.description.abstractWecompared parents of childrenwith congenital heart disease (PCCHD, n ¼ 1092) with parents of children with other diseases (PCOD, n ¼ 112) regarding satisfaction with their children’s care (SCC).Wealso examined the association between parental/patient characteristics and SCC. Method: The parents completed a questionnaire about such areas as satisfaction with care, children’s health status, and financial situation. The design was cross-sectional and data were gathered over 20 consecutive days. Results: The univariate and multivariate analyses showed that PCCHD were more satisfied with their children’s medical care and waiting period for treatment of their ill children than PCOD, although the difference was only modest. Furthermore, mothers were less satisfied with staff attitudes than fathers, with the lowest satisfaction among mothers of children with CHD. However, the multivariate analysis indicated that less satisfaction with care was more associated with decreasing child age, unemployment, financial burden of disease, social isolation and psychological distress than with children’s diseases, their severity and parental gender. Conclusion: We corroborated some previous findings and may have provided new insights regarding determinants of SCC among parents. Interventions to improve SCC may need to address issues of parental psychological distress, socialization, and financial burden of illness. Possible ways of achieving this are discussed. Finally, research in a longitudinal format is needed to further scrutinize determinants of parental SCCen_US
dc.identifier.citationLawoko, S., & Soares, J. J. (2004). Satisfaction with care: a study of parents of children with congenital heart disease and parents of children with other diseases. Scandinavian Journal of Caring Sciences, 18(1), 90-102.en_US
dc.identifier.urihttps://onlinelibrary.wiley.com/doi/abs/10.1111/j.1471-6712.2004.00264.x
dc.identifier.urihttps://nru.uncst.go.ug/handle/123456789/3318
dc.language.isoenen_US
dc.publisherScandinavian Journal of Caring Sciencesen_US
dc.subjectCongenital heart diseaseen_US
dc.subjectSatisfaction with careen_US
dc.subjectParentsen_US
dc.subjectPsychological distressen_US
dc.subjectSocial supporten_US
dc.subjectFinancial status.en_US
dc.titleSatisfaction with care: a study of parents of children with congenital heart disease and parents of children with other diseasesen_US
dc.typeArticleen_US
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