Satisfaction with care: a study of parents of children with congenital heart disease and parents of children with other diseases
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Date
2004
Authors
Journal Title
Journal ISSN
Volume Title
Publisher
Scandinavian Journal of Caring Sciences
Abstract
Wecompared parents of childrenwith congenital heart
disease (PCCHD, n ¼ 1092) with parents of children with
other diseases (PCOD, n ¼ 112) regarding satisfaction with
their children’s care (SCC).Wealso examined the association
between parental/patient characteristics and SCC.
Method: The parents completed a questionnaire about such
areas as satisfaction with care, children’s health status, and
financial situation. The design was cross-sectional and data
were gathered over 20 consecutive days.
Results: The univariate and multivariate analyses showed
that PCCHD were more satisfied with their children’s
medical care and waiting period for treatment of their ill
children than PCOD, although the difference was only
modest. Furthermore, mothers were less satisfied with staff
attitudes than fathers, with the lowest satisfaction among
mothers of children with CHD. However, the multivariate
analysis indicated that less satisfaction with care was more
associated with decreasing child age, unemployment,
financial burden of disease, social isolation and psychological
distress than with children’s diseases, their severity
and parental gender.
Conclusion: We corroborated some previous findings and
may have provided new insights regarding determinants of
SCC among parents. Interventions to improve SCC may
need to address issues of parental psychological distress,
socialization, and financial burden of illness. Possible ways
of achieving this are discussed. Finally, research in a longitudinal
format is needed to further scrutinize determinants
of parental SCC
Description
Keywords
Congenital heart disease, Satisfaction with care, Parents, Psychological distress, Social support, Financial status.
Citation
Lawoko, S., & Soares, J. J. (2004). Satisfaction with care: a study of parents of children with congenital heart disease and parents of children with other diseases. Scandinavian Journal of Caring Sciences, 18(1), 90-102.