Experiences and practices of key research team members in obtaining informed consent for pharmacogenetic research among people living with HIV: a qualitative study

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dc.contributor.authorOchieng, Joseph
dc.contributor.authorKaawa-Mafigiri, David
dc.contributor.authorMunabi, Ian
dc.contributor.authorNakigudde, Janet
dc.contributor.authorNabukenya, Sylvia
dc.contributor.authorNakwagala, Frederick N.
dc.contributor.authorBarugahare, John
dc.contributor.authorKwagala, Betty
dc.contributor.authorIbingira, Charles
dc.contributor.authorTwimwijukye, Adelline
dc.contributor.authorSewankambo, Nelson
dc.contributor.authorMwaka Sabakaki, Erisa
dc.date.accessioned2022-03-07T10:50:09Z
dc.date.available2022-03-07T10:50:09Z
dc.date.issued2022
dc.description.abstractThis study aimed to explore experiences and practices of key research team members in obtaining informed consent for pharmacogenetics research and to identify the approaches used for enhancing understanding during the consenting process. Data collection involved 15 qualitative, in-depth interviews with key researchers who were involved in obtaining informed consent from HIV infected individuals in Uganda for participation in pharmacogenetic clinical trials. The study explored two prominent themes: approaches used to convey information and enhance research participants’ understanding and challenges faced during the consenting process. Several barriers and facilitators for obtaining consent were identified. Innovative and potentially effective consenting strategies were identified in this study that should be studied and independently verified.en_US
dc.identifier.citationSylvia, N., Joseph, O., David, K. M., Ian, M., Janet, N., Nelson, N. F., ... & Erisa Sabakaki, M. (2022). Experiences and practices of key research team members in obtaining informed consent for pharmacogenetic research among people living with HIV: a qualitative study. Research Ethics, 10.1177/17470161221076974en_US
dc.identifier.otherDOI: 10.1177/17470161221076974
dc.identifier.urihttps://nru.uncst.go.ug/xmlui/handle/123456789/2450
dc.language.isoenen_US
dc.publisherResearch Ethicsen_US
dc.subjectInformed consenten_US
dc.subjectHIV researchen_US
dc.subjectpharmacogenetics researchen_US
dc.subjectassessment of understandingen_US
dc.subjectUgandaen_US
dc.titleExperiences and practices of key research team members in obtaining informed consent for pharmacogenetic research among people living with HIV: a qualitative studyen_US
dc.typeArticleen_US
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