Experiences and practices of key research team members in obtaining informed consent for pharmacogenetic research among people living with HIV: a qualitative study
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Date
2022
Journal Title
Journal ISSN
Volume Title
Publisher
Research Ethics
Abstract
This study aimed to explore experiences and practices of key research team members in obtaining informed consent for pharmacogenetics research and to identify the approaches used for enhancing understanding during the consenting process. Data collection involved 15 qualitative, in-depth interviews with key researchers who were involved in obtaining informed
consent from HIV infected individuals in Uganda for participation in pharmacogenetic clinical trials. The study explored two prominent themes: approaches used to convey information and enhance research participants’ understanding and challenges faced during the consenting process. Several barriers and facilitators for obtaining consent were identified. Innovative and
potentially effective consenting strategies were identified in this study that should be studied and independently verified.
Description
Keywords
Informed consent, HIV research, pharmacogenetics research, assessment of understanding, Uganda
Citation
Sylvia, N., Joseph, O., David, K. M., Ian, M., Janet, N., Nelson, N. F., ... & Erisa Sabakaki, M. (2022). Experiences and practices of key research team members in obtaining informed consent for pharmacogenetic research among people living with HIV: a qualitative study. Research Ethics, 10.1177/17470161221076974