Exploring community perceptions of gender roles as a predisposing factorin schistosomiasis infection in southwestern Uganda

Abstract

Schistosomiasis, a neglected tropical disease, affects people of all genders and ages.However, few studies have examined how communities in endemic areas perceivegender roles as factors influencing infection and control. This study explored theperceptions of farming (Kyaterekera) and fishing (Ndaiga) communities along LakeAlbert in Uganda's Kagadi District regarding gender roles and their role in schistosomi-asis infection. Using an ethnographic design, we conducted 10 key informant interviewsand 18 focus group discussions with 150 participants. Data were analysed thematically.Participants from both settings recognised that gender roles influence infection riskdifferently for men and women. Societal expectations and gender stereotypes wereseen as contributing factors. Farming men often perceived bilharzia as a lake-side issue.Drug side effects were a shared concern, but women in fishing communities preferredusing herbs and prayers, while men favoured hospital visits. Gender roles and percep-tions of schistosomiasis risk vary by gender and location. Common themes includesocietal expectations, stereotypes and concerns about treatment. Gender-specific inter-ventions, such as gender-sensitive campaigns and inclusive decision-making, couldhelp effectively control the disease.