Dissemination of Research Findings to Research Participants Living with HIV in Rural Uganda: Challenges and Rewards
Loading...
Date
2013
Journal Title
Journal ISSN
Volume Title
Publisher
PLoS Medicine
Abstract
Community participatory research emphasizes communication of study findings to research participants of vulnerable populations [1]. Most dissemination activities in sub-Saharan Africa have occurred after the completion (or termination) of randomized clinical trials of a defined intervention [2–4]. Sharing research findings with participants during observational research can avoid therapeutic misconception [5] as well as evaluate the validity of research involving knowledge, attitudes, or behavior through a ‘‘member check’’ procedure in which investigators conduct interviews regarding the relevancy and saliency of their findings [6]. Nonetheless, the communication of research findings to participants living with HIV enrolled in observational research in a rural sub- Saharan African setting is less straight forward and presents significant challenges respect to literacy, language, logistics, and confidentiality.
Description
Keywords
Research Findings, Research Participants, HIV, Rural Uganda, Rewards
Citation
Baylor A, Muzoora C, Bwana M, Kembabazi A, Haberer JE, et al. (2013) Dissemination of Research Findings to Research Participants Living with HIV in Rural Uganda: Challenges and Rewards. PLoS Med 10(3): e1001397. doi:10.1371/journal.pmed.1001397