Factors influencing satisfaction and well-being among parents of congenital heart disease children: development of a conceptual model based on the literature review
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Date
2007
Authors
Journal Title
Journal ISSN
Volume Title
Publisher
Scandinavian Journal of Caring Sciences
Abstract
The treatment and management of congenital
heart disease (CHD) has improved dramatically
over the past 25 years, necessitating re-evaluation of satisfaction
with care and well-being among CHD children
and their parents (PCCHD). The present study reviews the
published literature over the past 25 years on parental
satisfaction with the paediatric care of CHD and well-being
among the parents, with the specific aim of: (a) assessing
the extent of psychosocial problems and grade of satisfaction
with care and (b) modelling factors associated with
satisfaction and well-being among the parents.
Results: There is general agreement in the literature that
PCCHD experience psychosocial morbidity to a higher
degree than parents of children with other paediatric
conditions and parents of healthy children. The research
on satisfaction with care among PCCHD is not conclusive,
though there is considerable agreement that a substantial
proportion of PCCHD may not be receiving adequate
information regarding the ill-child’s condition, treatment
and medical prognosis. Finally, based on the review of
factors affecting satisfaction and well-being, a model is
generated indicating that interactions between parental
perception of CHD, psychosocial resources and social vulnerability
may account for differences in well-being among
PCCHD, which in turn may explain differences in satisfaction
with care among them.
Conclusion: A holistic approach to the care of CHD that
acknowledges the role of parents’ perception of CHD, need
for psychosocial resources and social vulnerability in the
adaptation process is recommended to improve parental
satisfaction with the care of CHD.
Description
Keywords
Congenital heart disease, Parents, Satisfaction, Well-being, Psychosocial resources, Social vulnerability, Family health, Review
Citation
Lawoko, S. (2007). Factors influencing satisfaction and well‐being among parents of congenital heart disease children: development of a conceptual model based on the literature review. Scandinavian Journal of Caring Sciences, 21(1), 106-117.