The Social, Economic, Emotional, and Physical Experiences Of Caregivers for Women with Female Genital Fistula in Uganda: A Qualitative Study

Simple item page
dc.contributor.authorEl Ayadi, Alison M.
dc.contributor.authorNalubwama, Hadija
dc.contributor.authorSemere, Wagahta
dc.contributor.authorBarageine, Justus K.
dc.contributor.authorObore, Susan
dc.contributor.authorLucas, Ruby
dc.contributor.authorByamugisha, Josaphat
dc.date.accessioned2025-01-14T16:42:23Z
dc.date.available2025-01-14T16:42:23Z
dc.date.issued2023-09-06
dc.description.abstractThis study aimed to explore the firsthand experiences of informal primary caregivers of women with female genital fistula in Uganda. Caregivers that accompanied women for surgery at Mulago National Teaching and Referral Hospital were recruited between January and September 2015. Caregivers participated in in-depth interviews and focus groups. Data were analysed thematically and informed adaptation of a conceptual framework. Of 43 caregivers, 84% were female, 95% family members, and most married and formally employed. Caregivers engaged in myriad personal care and household responsibilities, and described being on call for an average of 22.5 h per day. Four overlapping themes emerged highlighting social, economic, emotional, and physical experiences/consequences. The caregiving experience was informed by specific caregiver circumstances (e.g. personal characteristics, care needs of their patient) and dynamic stressors/supports within the caregiver’s social context. These results demonstrate that caregivers’ lived social, economic, emotional, and physical experiences and consequences are influenced by both social factors and individual characteristics of both the caregiver and their patient. This study may inform programmes and policies that increase caregiving supports while mitigating caregiving stressors to enhance the caregiving experience, and ultimately ensure its feasibility, particularly in settings with constrained resources.
dc.identifier.citationEl Ayadi, A. M., Mitchell, A., Nalubwama, H., Miller, S., Semere, W., Barageine, J. K., ... & Byamugisha, J. (2023). The social, economic, emotional, and physical experiences of caregivers for women with female genital fistula in Uganda: A qualitative study. Global public health, 18(1), 2242458. https://doi.org/10.1080/17441692.2023.2242458
dc.identifier.otherhttps://doi.org/10.1080/17441692.2023.2242458
dc.identifier.urihttps://nru.uncst.go.ug/handle/123456789/9761
dc.language.isoen
dc.publisherGlobal public health
dc.titleThe Social, Economic, Emotional, and Physical Experiences Of Caregivers for Women with Female Genital Fistula in Uganda: A Qualitative Study
dc.typeArticle
Files
Original bundle
Now showing 1 - 1 of 1
Thumbnail Image
Name:
The social economic emotional and physical experiences of caregivers for women with female genital fistula in Uganda A qualitative study.pdf
Size:
2.07 MB
Format:
Adobe Portable Document Format
Download
License bundle
Now showing 1 - 1 of 1
No Thumbnail Available
Name:
license.txt
Size:
1.71 KB
Format:
Item-specific license agreed upon to submission
Description:
Download
Collections
Medical and Health Sciences