Sustaining social support for lifelong HIV treatment: Practices of patients on antiretroviral therapy in Uganda

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dc.contributor.authorNanfuka, Esther K.
dc.contributor.authorKyaddondo, David
dc.contributor.authorSsali, Sarah N.
dc.contributor.authorAsingwire, Narathius
dc.date.accessioned2021-12-12T17:11:20Z
dc.date.available2021-12-12T17:11:20Z
dc.date.issued2019
dc.description.abstractSocial support is recognized as a critical resource in promoting adherence to antiretroviral therapy (ART) in resource-poor settings. However, supporter burn-out and stigma may constrain access to social support in the long-term. Little is written about how ART clients overcome these barriers to continue accessing support for lifelong treatment. Therefore, this article examines practices that enable HIV patients in a resource-poor setting to overcome the constraints of stigma and burn-out to continue accessing treatment support. The article is based on data from an ethnographic study of 50 patients enrolled on ART at two treatment sites. Fifteen of these patients were followed-up for six months. The main methods of data collection included in-depth interviews and participant observation. Dependent patients overcame the constraints of stigma and burn-out through three main practices: regulating the frequency of requests for assistance, using secrecy and lies, and continuously reconstituting the treatment support group. The study concludes that stigma and burn-out are serious threats to sustaining social support and concomitant adherence to lifelong ART. Integration of mechanisms for empowering patients to manage burn-out and stigma in HIV service delivery may improve prospects for sustained ART adherence in resource-poor settings.en_US
dc.identifier.citationNanfuka, E. K., Kyaddondo, D., Ssali, S. N., & Asingwire, N. Sustaining social support for lifelong HIV treatment: Practices of patients on antiretroviral therapy in Uganda. ISSN 2326-2691en_US
dc.identifier.issn2326-2691
dc.identifier.urihttps://nru.uncst.go.ug/xmlui/handle/123456789/369
dc.language.isoenen_US
dc.publisherInternational Scholars Journalsen_US
dc.subjectAntiretroviral therapyen_US
dc.subjectBurn-outen_US
dc.subjectPeople living with HIVen_US
dc.subjectSocial supporten_US
dc.subjectStigmaen_US
dc.subjectTherapy management groupen_US
dc.titleSustaining social support for lifelong HIV treatment: Practices of patients on antiretroviral therapy in Ugandaen_US
dc.typeArticleen_US
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