Capacity of community advisory boards for effective engagement in clinical research: a mixed methods study

Simple item page
dc.contributor.authorMugenyi, Levicatus
dc.contributor.authorMijumbi, Andrew
dc.contributor.authorNanfuka, Mastula
dc.contributor.authorAgaba, Collins
dc.contributor.authorKaliba, Fedress
dc.contributor.authorSeryazi Semakula, Irene
dc.contributor.authorBadanga Nazziwa, Winfred
dc.contributor.authorOchieng, Joseph
dc.date.accessioned2022-04-30T16:04:17Z
dc.date.available2022-04-30T16:04:17Z
dc.date.issued2021
dc.description.abstractCommunity engagement is a key component in health research. One of the ways health researchers ensure community engagement is through Community Advisory Boards (CABs). The capacity of CABs to properly perform their role in clinical research has not been well described in many resource limited settings. In this study, we assessed the capacity of CABs for effective community engagement in Uganda. Methods: We conducted a cross sectional study with mixed methods. We used structured questionnaires and key informant interviews (KII) to collect data from CAB members, trial investigators, and community liaison officers. For quantitative data, we used descriptive statistics while for qualitative data we used content analysis. Results: Seventy three CAB members were interviewed using structured questionnaires; 58.9% males, median age 49 years (IQR 24–70), 71.2% had attained tertiary education, 42.5% never attended any research ethics training, only 26% had a training in human subject protection, 30.1% had training in health research, 50.7% never attended any training about the role of CABs, and 72.6% had no guidelines for their operation. On the qualitative aspect, 24 KIIs cited CAB members to have some skills and ability to understand and review study documents, offer guidance on community norms and expectations and give valuable feedback to the investigators. However, challenges like limited resources, lack of independence and guidelines, and knowledge gaps about research ethics were cited as hindrances of CABs capacity. Conclusion: Though CABs have some capacity to perform their role in the Ugandan setting, their functionality is limited by lack of resources to facilitate their work, lack of independence, lack of guidelines for their operations and limited knowledge regarding issues of research ethics and protection of the rights of trial participants.en_US
dc.identifier.citationMugenyi, L., Mijumbi, A., Nanfuka, M., Agaba, C., Kaliba, F., Semakula, I. S., ... & Ochieng, J. (2021). Capacity of community advisory boards for effective engagement in clinical research: a mixed methods study. BMC medical ethics, 22(1), 1-7. https://doi.org/10.1186/s12910-021-00733-0en_US
dc.identifier.urihttps://doi.org/10.1186/s12910-021-00733-0
dc.identifier.urihttps://nru.uncst.go.ug/handle/123456789/3052
dc.language.isoenen_US
dc.publisherBMC medical ethicsen_US
dc.subjectCABsen_US
dc.subjectCapacityen_US
dc.subjectResearch communitiesen_US
dc.subjectCommunity engagementen_US
dc.subjectResearch ethicsen_US
dc.subjectTrainingen_US
dc.subjectKnowledgeen_US
dc.titleCapacity of community advisory boards for effective engagement in clinical research: a mixed methods studyen_US
dc.typeArticleen_US
Files
Original bundle
Now showing 1 - 1 of 1
Thumbnail Image
Name:
Capacity of community advisory boards.pdf
Size:
931.36 KB
Format:
Adobe Portable Document Format
Description:
Article
Download
License bundle
Now showing 1 - 1 of 1
No Thumbnail Available
Name:
license.txt
Size:
1.71 KB
Format:
Item-specific license agreed upon to submission
Description:
Download
Collections
Medical and Health Sciences