Consent for mobile phone surveys of non-communicable disease risk factors in low-resource settings: an exploratory qualitative study in Uganda

Simple item page
dc.contributor.authorMwaka, Erisa
dc.contributor.authorNakigudde, Janet
dc.contributor.authorAli, Joseph
dc.contributor.authorOchieng, Joseph
dc.contributor.authorHallez, Kristina
dc.contributor.authorTweheyo, Raymond
dc.contributor.authorLabrique, Alain
dc.contributor.authorGibson, Dustin G.
dc.contributor.authorRutebemberwa, Elizeus
dc.contributor.authorPariyo, George
dc.date.accessioned2022-05-19T09:39:42Z
dc.date.available2022-05-19T09:39:42Z
dc.date.issued2019
dc.description.abstractLack of data for timely decision-making around the prevention and control of noncommunicable diseases (NCDs) presents special challenges for policy makers, especially in resource-limited settings. New data collection methods, including pre-recorded Interactive Voice Response (IVR) phone surveys, are being developed to support rapid compilation of population-level disease risk factor information in such settings. We aimed to identify information that could be used to optimize consent approaches for future mobile phone surveys (MPS) employed in Uganda and, possibly, similar contexts. Methods: We conducted an in-depth qualitative study with key stakeholders in Uganda about consent approaches, and potential challenges, for pre-recorded IVR NCD risk factor surveys. Semi-structured interviews were conducted with 14 key informants. A contextualized thematic approach was used to interpret the results supported by representative quotes. Results: Several potential challenges in designing consent approaches for MPS were identified, including low literacy and the lack of appropriate ways of assessing comprehension and documenting consent. Communication with potential respondents prior to the MPS and providing options for callbacks were suggested as possible strategies for improving comprehension within the consent process. “Opt-in” forms of authorization were preferred over “opt-out”. There was particular concern about data security and confidentiality and how matters relating to this would be communicated to MPS respondents. Conclusions: These local insights provide important information to support optimization of consent for MPS, whose use is increasing globally to advance public health surveillance and research in constructive waysen_US
dc.identifier.citationMwaka, E., Nakigudde, J., Ali, J., Ochieng, J., Hallez, K., Tweheyo, R., ... & Pariyo, G. (2019). Consent for mobile phone surveys of non-communicable disease risk factors in low-resource settings: an exploratory qualitative study in Uganda. Mhealth, 5. http://dx.doi.org/10.21037/mhealth.2019.07.05 http://dx.doi.org/10.21037/mhealth.2019.07.05en_US
dc.identifier.urihttp://dx.doi.org/10.21037/mhealth.2019.07.05
dc.identifier.urihttps://nru.uncst.go.ug/handle/123456789/3268
dc.language.isoenen_US
dc.publisherMhealthen_US
dc.subjectMobile phone surveys (MPS)en_US
dc.subjectConsenten_US
dc.subjectmHealthen_US
dc.subjectPublic health surveillanceen_US
dc.subjectUgandaen_US
dc.titleConsent for mobile phone surveys of non-communicable disease risk factors in low-resource settings: an exploratory qualitative study in Ugandaen_US
dc.typeArticleen_US
Files
Original bundle
Now showing 1 - 1 of 1
Thumbnail Image
Name:
Consent for mobile phone surveys of non-communicable disease.pdf
Size:
234.23 KB
Format:
Adobe Portable Document Format
Description:
Article
Download
License bundle
Now showing 1 - 1 of 1
No Thumbnail Available
Name:
license.txt
Size:
1.71 KB
Format:
Item-specific license agreed upon to submission
Description:
Download
Collections
Medical and Health Sciences