The Role, Impact, and Support of Informal Caregivers in the Delivery of Palliative Care for Patients with Advanced Cancer: A Multi-Country Qualitative Study

Simple item page
dc.contributor.authorAdejoh, Samuel Ojima
dc.contributor.authorBoele, Florien
dc.contributor.authorAkeju, David
dc.contributor.authorDandadzi, Adlight
dc.contributor.authorNabirye, Elizabeth
dc.contributor.authorNamisango, Eve
dc.contributor.authorNamukwaya, Elizabeth
dc.contributor.authorEbenso, Bassey
dc.contributor.authorNkhoma, Kennedy
dc.contributor.authorAllsop, Matthew J.
dc.date.accessioned2022-06-30T20:14:28Z
dc.date.available2022-06-30T20:14:28Z
dc.date.issued2021
dc.description.abstractCancer is increasing in its prevalence in sub-Saharan Africa. Informal caregivers are key to supporting engagement and interaction with palliative care services, but limited literature on their role impedes development of supportive interventions.We aimed to understand the role, impact, and support of informal caregivers of patients with advanced cancer when interacting with palliative care services in Nigeria, Uganda, and Zimbabwe.Secondary analysis of qualitative interview transcripts. The dataset was assessed for fit and relevance and framework approach was used.Interview transcripts of informal caregivers included participants aged over 18 years of age recruited from palliative care services across participating countries.A total of 48 transcripts were analyzed. Mean age was 37 (range 19–75) with equal numbers of men and women. Five themes emerged from the data: (1) caregivers are coordinators of emotional, practical, and health service matters; (2) caregiving comes at a personal social and financial cost; (3) practical and emotional support received and required; (4) experience of interacting and liaising with palliative care services; and (5) barriers and recommendations relating to the involvement of palliative care.The role of informal caregivers is multi-faceted, with participants reporting taking care of the majority of medical, physical, financial, and emotional needs of the care recipient, often in the face of sacrifices relating to employment, finances, and their own health and social life. Efforts to develop comprehensive cancer control plans in sub-Saharan Africa must take account of the increasing evidence of informal caregiver needs.en_US
dc.identifier.citationAdejoh, S. O., Boele, F., Akeju, D., Dandadzi, A., Nabirye, E., Namisango, E., ... & Allsop, M. J. (2021). The role, impact, and support of informal caregivers in the delivery of palliative care for patients with advanced cancer: A multi-country qualitative study. Palliative medicine, 35(3), 552-562.https://doi.org/10.1177%2F0269216320974925en_US
dc.identifier.urihttps://nru.uncst.go.ug/handle/123456789/4123
dc.language.isoenen_US
dc.publisherPalliative medicineen_US
dc.subjectPalliative care, caregivers, neoplasms, Africa South of the Sahara, qualitative researchen_US
dc.titleThe Role, Impact, and Support of Informal Caregivers in the Delivery of Palliative Care for Patients with Advanced Cancer: A Multi-Country Qualitative Studyen_US
dc.typeArticleen_US
Files
Original bundle
Now showing 1 - 1 of 1
Thumbnail Image
Name:
The role, impact, and support of informal caregivers in the delivery of palliative care for patients with advanced cancer A multi-country qualitative study.pdf
Size:
832.03 KB
Format:
Adobe Portable Document Format
Description:
The role, impact, and support of informal caregivers in the delivery of palliative care for patients with advanced cancer: A multi-country qualitative study
Download
License bundle
Now showing 1 - 1 of 1
No Thumbnail Available
Name:
license.txt
Size:
1.71 KB
Format:
Item-specific license agreed upon to submission
Description:
Download
Collections
Medical and Health Sciences