An exploration of caregiver burden for children with nodding syndrome (lucluc) in Northern Uganda

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dc.contributor.authorNakigudde, Janet
dc.contributor.authorMutamba, Byamah Brian
dc.contributor.authorBazeyo, William
dc.contributor.authorMusisi, Seggane
dc.contributor.authorOkello, James
dc.date.accessioned2022-05-19T09:25:43Z
dc.date.available2022-05-19T09:25:43Z
dc.date.issued2016
dc.description.abstractCaregivers of patients with chronic illnesses are often uncompensated for work that is physically demanding, time consuming and emotionally and economically draining. This is particularly true for caregivers of children with nodding syndrome, an emergent neurological disorder of unknown etiology in resource poor settings in Africa. We aimed to explore perceptions of caregivers regarding challenges that a typical caregiver faces when caring for a child with nodding syndrome. Methods: We used a qualitative exploratory study design with focus group discussions and in-depth interviews to collect data. We analyzed data using the qualitative analysis software package of NVivo and thematic query building. Results: Emergent themes centered on burden of care with emotional agony as the most prominent. Subthemes reflecting the burden of care giving included child and caregiver safety concerns, burnout, social isolation and rejection, and homicidal ideation. Caregivers also complained of physical and financial constraints associated with the care of children with nodding syndrome. Conclusions: The findings point to a high burden of care for caregivers of children with nodding syndrome and suggests the need to incorporate community-based psychosocial and mental health care services for the caregivers of affected children into the national health system response.en_US
dc.identifier.citationNakigudde, J., Mutamba, B. B., Bazeyo, W., Musisi, S., & James, O. (2016). An exploration of caregiver burden for children with nodding syndrome (lucluc) in Northern Uganda. BMC psychiatry, 16(1), 1-11.en_US
dc.identifier.other10.1186/s12888-016-0955-x
dc.identifier.urihttps://nru.uncst.go.ug/handle/123456789/3267
dc.language.isoenen_US
dc.publisherBMC psychiatryen_US
dc.subjectNodding syndromeen_US
dc.subjectCaregiveren_US
dc.subjectCaregiver burdenen_US
dc.subjectNorthern Ugandaen_US
dc.titleAn exploration of caregiver burden for children with nodding syndrome (lucluc) in Northern Ugandaen_US
dc.typeArticleen_US
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