Care Burden and Coping Strategies among Caregivers of Paediatric HIV/AIDS in Northern Uganda: A Cross-Sectional Mixed-Method Study

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dc.contributor.authorMujjuzi, Ibrahim
dc.contributor.authorMutegeki, Paul
dc.contributor.authorNabuwufu, Sarah
dc.contributor.authorWosukira, Ashim
dc.contributor.authorNamata, Fazirah
dc.contributor.authorAlayo, Patience
dc.contributor.authorAmanya, Sharon B.
dc.contributor.authorNyeko, Richard
dc.date.accessioned2022-12-01T00:18:42Z
dc.date.available2022-12-01T00:18:42Z
dc.date.issued2021
dc.description.abstractFamily caregivers provide the bulk of care to children living with HIV. +is places an enormous demand and care burden on the caregivers who often struggle to cope in various ways, some of which may be maladaptive. +is may adversely affect their quality of care. Very little literature exists in resource-limited contexts on the burden of care experienced by caregivers on whom children living with HIV/AIDS depend for their long-term care. We assessed care burden and coping strategies among the caregivers of paediatric HIV/AIDS patients in Lira district, northern Uganda. Methods. A mixed-method cross-sectional study was conducted among 113 caregivers of paediatric HIV patients attending the ARTclinic at a tertiary healthcare facility in Lira district, northern Uganda. A consecutive sampling method was used to select participants for the quantitative study, while 15 respondents were purposively sampled for the qualitative data. Quantitative data were collected using standard interviewer-administered questionnaires, while in-depth interview guides were used to collect qualitative data. Data were entered, cleaned, and analysed using SPSS version 23. Qualitative data were analysed thematically. Results. +emajority of the caregivers, 65.5% (74), experienced mild-to-moderate burden. +e mean burden scores significantly differed by caregivers’ age (P � 0.017), marital status (P � 0.017), average monthly income (P � 0.035), and child’s school attendance (P � 0.039). Accepting social support, seeking spiritual support, and reframing were the three most commonly used strategies for coping. Marital status and occupation were, respectively, positively and negatively correlated with information-seeking as a coping strategy, while monthly income was positively correlated with psychosocial support as a strategy. Seeking community support was negatively correlated with the duration of the child’s care. Conclusions. Our findings show that care burden is a common problem among the caregivers of children living with HIV in the study context.en_US
dc.identifier.citationMujjuzi, I., Mutegeki, P., Nabuwufu, S., Wosukira, A., Namata, F., Alayo, P., ... & Nyeko, R. (2021). Care Burden and Coping Strategies among Caregivers of Paediatric HIV/AIDS in Northern Uganda: A Cross-Sectional Mixed-Method Study. AIDS Research and Treatment, 2021.https://doi.org/10.1155/2021/6660337en_US
dc.identifier.otherhttps://doi.org/10.1155/2021/6660337
dc.identifier.urihttps://nru.uncst.go.ug/handle/123456789/5603
dc.language.isoenen_US
dc.publisherAIDS Research and Treatmenten_US
dc.subjectcaregiversen_US
dc.subjectpaediatric HIV patientsen_US
dc.subjectCopingStrategiesen_US
dc.titleCare Burden and Coping Strategies among Caregivers of Paediatric HIV/AIDS in Northern Uganda: A Cross-Sectional Mixed-Method Studyen_US
dc.typeArticleen_US
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