How to Understand and Address the Cultural Aspects and Consequences of Diagnosis of Epilepsy, Including Stigma

Simple item page
dc.contributor.authorBraga, Patricia
dc.contributor.authorHosny, Hassan
dc.contributor.authorMwesige, Angelina Kakooza
dc.contributor.authorRider, Flora
dc.contributor.authorTripathi, Manjari
dc.contributor.authorGuekht, Alla
dc.date.accessioned2022-02-28T20:01:51Z
dc.date.available2022-02-28T20:01:51Z
dc.date.issued2020
dc.description.abstractEpilepsy is one of the most prevalent serious neurological diseases. It is unique, being the only severe and disabling neurological disease that is fully treatable in the majority of cases, but on the other hand, associated with stigma, prejudice and discriminatory practices, which negatively impact people's everyday life in important areas, such as access to education, employment, marriage and social integration. For centuries, people with epilepsy (PWE) were stigmatized in all societies, with the consequences of prejudice and discrimination adding to the medical burden of the disease. Myths and misconceptions about this disease still occur, mostly in low-resources settings, however, in many industrialized countries, the knowledge regarding epilepsy is still limited in the population. The stigma is perceived as a negative attribute that is undesirable for the community to which the individual belongs. PWE are intrinsically undervalued, both by themselves (“felt stigma”) and by the others. Actual discrimination by peers and institutions generates what is referred to as “enacted stigma”. Misconceptions, stigma and negative attitudes towards PWE dramatically decrease quality of life, affecting the most sensitive areas, such as marriage, employment and driving. The Resolution 68.28 of the World Health Assembly (2015), the WHO-ILAE-IBE Global Report “Epilepsy: a public health imperative”, advocates for strengthening and implementing national policies and legislation to promote and protect the rights of PWE, reducing misconceptions about epilepsy and improving access to care. Consolidated efforts are required from different organizations, public health managers, healthcare providers, PWE and their families to work together to improve socialization and quality of life of PWE. Educational programs and awareness to support activities among the general population, health service providers and PWE are the best way to reduce all types of stigma and discrimination.en_US
dc.identifier.citationBraga, P., Hosny, H., Kakooza‐Mwesige, A., Rider, F., Tripathi, M., & Guekht, A. (2020). How to understand and address the cultural aspects and consequences of diagnosis of epilepsy, including stigma. Epileptic Disorders, 22(5), 531-547.https://doi.org/10.1684/epd.2020.1201en_US
dc.identifier.urihttps://nru.uncst.go.ug/xmlui/handle/123456789/2339
dc.language.isoenen_US
dc.publisherEpileptic Disordersen_US
dc.subjectepilepsy, stigma, discrimination, quality of life, marriage, employment, driving, non-adherence, educational programsen_US
dc.titleHow to Understand and Address the Cultural Aspects and Consequences of Diagnosis of Epilepsy, Including Stigmaen_US
dc.typeArticleen_US
Files
Original bundle
Now showing 1 - 1 of 1
Thumbnail Image
Name:
How to Understand and.pdf
Size:
545.56 KB
Format:
Adobe Portable Document Format
Description:
How to Understand and Address the Cultural Aspects and Consequences of Diagnosis of Epilepsy, Including Stigma
Download
License bundle
Now showing 1 - 1 of 1
No Thumbnail Available
Name:
license.txt
Size:
1.71 KB
Format:
Item-specific license agreed upon to submission
Description:
Download
Collections
Medical and Health Sciences