The quality of death and dying of patients with advanced cancer in hospice care in Uganda and Kenya

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dc.contributor.authorGoombs, Mary
dc.contributor.authorMah, Kenneth
dc.contributor.authorNamisango, Eve
dc.contributor.authorLuyirika, Emmanuel
dc.contributor.authorMwangi-Powell, Faith
dc.contributor.authorGikaara, Nancy
dc.contributor.authorChalklin, Lesley
dc.contributor.authorRydall, Anne
dc.contributor.authorZimmermann, Camilla
dc.contributor.authorHales, Sarah
dc.contributor.authorWolofsky, Kayla
dc.contributor.authorTilly, Alyssa
dc.contributor.authorPowell, Richard A
dc.contributor.authorRodin, Gary
dc.date.accessioned2023-11-22T13:48:08Z
dc.date.available2023-11-22T13:48:08Z
dc.date.issued2023-11
dc.description.abstractAbstract Objectives. Minimal information is available about the quality of dying and death in Uganda and Kenya, which are African leaders in palliative care. We investigated the quality of dying and death in patients with advanced cancer who had received hospice care in Uganda or Kenya. Methods. Observational study with bereaved caregivers of decedents (Uganda: n = 202; Kenya: n = 127) with advanced cancer who had received care from participating hospices in Uganda or Kenya. Participants completed the Quality of Dying and Death questionnaire and a measure of family satisfaction with cancer care (FAMCARE). Results. Quality of Dying and Death Preparation and Connectedness subscales were most frequently rated as good to almost perfect for patients in both countries (45.5% to 81.9%), while Symptom Control and Transcendence subscales were most frequently rated as intermediate (42.6% to 60.4%). However, 35.4% to 67.7% of caregivers rated overall quality of dying and overall quality of death as terrible to poor. Ugandan caregivers reported lower Preparation, Connectedness, and Transcendence (p < .001). Controlling for covariates, overall quality of dying was associated with better Symptom Control in both countries (p < .001) and Transcendence in Uganda (p = .010); overall quality of death, with greater Transcendence in Uganda (p = .004); and family satisfaction with care, with better Preparation in Uganda (p = .004). Significance of results. Findings indicate strengths in spiritual and social domains of the quality of dying and death in patients who received hospice care in Uganda and Kenya, but better symptom control is needed to improve this outcome in these countries.en_US
dc.identifier.citationGoombs, Mary, Kenneth Mah, Eve Namisango, et al. 'The Quality of Death and Dying of Patients with Advanced Cancer in Hospice Care in Uganda and Kenya', Palliative & Supportive Care, (2023), pp. 1-10.en_US
dc.identifier.issnISSN 1478-9515
dc.identifier.issnEISSN 1478-9523
dc.identifier.urihttps://nru.uncst.go.ug/handle/123456789/9355
dc.language.isoenen_US
dc.publisherCambridge University Pressen_US
dc.subjectAdvanced cancer; Hospice care; Kenya; Quality of dying and death; Ugandaen_US
dc.titleThe quality of death and dying of patients with advanced cancer in hospice care in Uganda and Kenyaen_US
dc.typeArticleen_US
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