Barriers to Biomedical Care for People with Epilepsy in Uganda: A Crosssectional Study

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dc.contributor.authorKaddumukasa, Martin N.
dc.contributor.authorKaddumukasa, Mark
dc.contributor.authorKajumba, Mayanja
dc.contributor.authorSmith, Patrick J.
dc.contributor.authorBobholz, Samuel
dc.contributor.authorMwesige, Angelina Kakooza
dc.contributor.authorSinha, Drishti D.
dc.contributor.authorAlmojuela, Alysa
dc.contributor.authorChakraborty, Payal
dc.contributor.authorNakasujja, Noeline
dc.contributor.authorNakku, Juliet
dc.contributor.authorGualtieri, Alex
dc.contributor.authorOnuoha, Erica
dc.contributor.authorKolls, Brad J.
dc.contributor.authorMuhumuza, Christine
dc.contributor.authorSmith, Caleigh E.
dc.contributor.authorSanchez, Nadine
dc.contributor.authorFuller, Anthony T.
dc.contributor.authorHaglund, Michael M.
dc.contributor.authorKoltai, Deborah C.
dc.date.accessioned2022-03-01T08:03:04Z
dc.date.available2022-03-01T08:03:04Z
dc.date.issued2021
dc.description.abstractEpilepsy, a neurological disorder with effective biomedical treatment, remains largely untreated in Uganda. Potential reasons for this treatment gap (TG) include limited access to trained providers and clinics, social stigmata of seizures, cultural beliefs, or lack of public understanding of epilepsy as a treatable condition. The current study aimed to formally evaluate barriers faced by people with epilepsy (PWE) in Uganda when seeking biomedical care.In a cross-sectional study, 435 participants drawn from a community prevalence study were enrolled. We included participants reporting a history of recurrent seizures suggestive of epilepsy, who completed a survey about barriers to obtaining care for their symptoms. Principal axis factor analysis (PFA) using a promax rotation was conducted for data reduction. Frequencies of barrier factors were compared across those who did not seek care for epilepsy (n = 228), those who sought care from biomedical facilities (n = 166), and those who sought care from a traditional or pastoral healer (n = 41).The PFA yielded a five-factor solution: 1) logistical and actual costs; 2) treatment effectiveness; 3) influence of the opinion of others; 4) doctors' care; and 5) contextual factors impacting decision-making. Variables related to logistical and actual costs were most endorsed. Comparison of groups by care sought did not reveal a difference in endorsement of factors, with the exception that those who sought biomedical care were more likely to endorse factors related to doctors' care compared with those that sought care from traditional or pastoral healers (P = .005).People with repetitive seizures in Uganda report several barriers to obtaining biomedical care in Uganda, with those related to practical and actual costs endorsed the most. It is imperative that interventions developed to reduce the TG in Uganda consider these practical issues to improve access to effective epilepsy care.en_US
dc.identifier.citationKaddumukasa, M. N., Kaddumukasa, M., Kajumba, M., Smith, P. J., Bobholz, S., Kakooza-Mwesige, A., ... & Koltai, D. C. (2021). Barriers to biomedical care for people with epilepsy in Uganda: A cross-sectional study. Epilepsy & Behavior, 114, 107349.https://doi.org/10.1016/j.yebeh.2020.107349en_US
dc.identifier.issn1525-5050
dc.identifier.urihttps://nru.uncst.go.ug/xmlui/handle/123456789/2354
dc.language.isoenen_US
dc.publisherEpilepsy & Behavioren_US
dc.subjectEpilepsy, Barriers to treatment, Cost, Ugandaen_US
dc.titleBarriers to Biomedical Care for People with Epilepsy in Uganda: A Crosssectional Studyen_US
dc.typeArticleen_US
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