Browsing by Author "Karamagi, Ednah"

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    Family Caregivers in Rural Uganda: The Hidden Reality
    (Health Care for Women International, 2007) Kipp, Walter; Tindyebwa, Denis; Rubaale, Tom; Karamagi, Ednah; Bajenja, Ellen
    Kabarole, Kyenyoyo, and Kamwenge districts have a home-based care program that consists of formal and informal parts. The formal part is made up of professional, government-paid nurses who are based at the nearest health center and who visit the homes of patients who have been admitted to the program. The informal part of the program is composed of family members who are the principle caregivers for the AIDS patients at home. Home care nurses deal only with the care for the AIDS patients and not with personal issues of the family caregiver. In the past few years, home visits of professional nurses have declined due to funding shortages of the Kabarole Health Department. Before funding cuts were introduced, the home-based care program coverage reached only an estimated 35% of homes requiring care. The HIV prevalence in the sexually active population is high and estimated to be around 14% in the districts. An estimated 4,200 AIDS patients require clinical care in the Kabarole district alone. The districts are typical for sub-Saharan Africa, with a high burden of infectious diseases, including malaria, tuberculosis, and parasitic infections. All homes visited during this study had no running water and no electricity, and were built poorly, with thatched roofs, mud walls, and earthen floors. Generally, home-based care programs are very much limited in Uganda and, to the best of our knowledge, there was no information on any formal programs targeting family caregiver support.
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    Family Caregiving to AIDS Patients: The Role of Gender in Caregiver Burden in Uganda
    (Journal of International Women's studies, 2006) Kipp, Walter; Tindyebwa, Denis; Karamagi, Ednah; Rubaale, Tom
    The objectives of the study were: 1) What is the burden of care for male and female family caregivers of AIDS patients? and 2) Which factors influence the family care burden for AIDS patients at home? A questionnaire was completed by 29 male and 91 female family caregivers of AIDS patients living in four rural areas in western Uganda. Participating caregivers were selected from a patient list of the home-based care program for AIDS patients and then interviewed. The responses from the questionnaire were used to calculate care burden scores for caregivers of both genders and the scores in each group were compared. In addition, other factors relevant to the burden of family care were extracted and tested in bivariate and multivariate analysis to test whether they were predictors of the care burden. Results show that the care burden scores were high in all domains, except those regarding relationship within the families and substance abuse. Both male and female caregivers reported a similar care burden. Caregivers for spouses had higher care burden scores compared to those who cared for other relatives. The intensity of care was also a significant predictor of the care burden, while other factors