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    Experiences and practices of key research team members in obtaining informed consent for pharmacogenetic research among people living with HIV: a qualitative study

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    Article (158.6Kb)
    Date
    2022
    Author
    Ochieng, Joseph
    Kaawa-Mafigiri, David
    Munabi, Ian
    Nakigudde, Janet
    Nabukenya, Sylvia
    Nakwagala, Frederick N.
    Barugahare, John
    Kwagala, Betty
    Ibingira, Charles
    Twimwijukye, Adelline
    Sewankambo, Nelson
    Mwaka Sabakaki, Erisa
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    Abstract
    This study aimed to explore experiences and practices of key research team members in obtaining informed consent for pharmacogenetics research and to identify the approaches used for enhancing understanding during the consenting process. Data collection involved 15 qualitative, in-depth interviews with key researchers who were involved in obtaining informed consent from HIV infected individuals in Uganda for participation in pharmacogenetic clinical trials. The study explored two prominent themes: approaches used to convey information and enhance research participants’ understanding and challenges faced during the consenting process. Several barriers and facilitators for obtaining consent were identified. Innovative and potentially effective consenting strategies were identified in this study that should be studied and independently verified.
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    https://nru.uncst.go.ug/xmlui/handle/123456789/2450
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    • Medical and Health Sciences [3684]

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