Browsing by Author "Kiyange, Fatia"

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    Best Practices in Developing a National Palliative Care Policy in Resource Limited Settings: Lessons from Five African Countries
    (Ecancermedicalscience, 2016) Luyirika, Emmanuel B.K.; Namisango, Eve; Garanganga, Eunice; Monjane, Lidia; Ginindza, Ntombi; Kiyange, Fatia
    Given the high unmet need for palliative care in Africa and other resource limited settings, it is important that countries embrace the public health approach to increasing access through its integration within existing healthcare systems. To give this approach a strong foundation that would ensure sustainability, the World Health Organisation urges member states to ensure that policy environments are suitable for this intervention. The development, strengthening, and implementation of national palliative care policies is a priority. Given the lack of a critical mass of palliative care professionals in the region and deficiency in documenting and sharing best practices as part of information critical for regional development, policy development becomes a complex process. This article shares experiences with regard to best practices when advocating the national palliative care policies. It also tells about policy development process, the important considerations, and cites examples of policy content outlines in Africa.
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    Strengthening Pharmaceutical Systems for Palliative Care Services in Resource Limited Settings: Piloting A mHealth Application across a Rural and Urban Setting in Uganda
    (BMC palliative care, 2016) Namisango, Eve; Ntege, Chris; Luyirika, Emmanuel B. K.; Kiyange, Fatia; Allsop, Matthew J.
    Medicine availability is improving in sub-Saharan Africa for palliative care services. There is a need to develop strong and sustainable pharmaceutical systems to enhance the proper management of palliative care medicines, some of which are controlled. One approach to addressing these needs is the use of mobile technology to support data capture, storage and retrieval. Utilizing mobile technology in healthcare (mHealth) has recently been highlighted as an approach to enhancing palliative care services but development is at an early stage.An electronic application was implemented as part of palliative care services at two settings in Uganda; a rural hospital and an urban hospice. Measures of the completeness of data capture, time efficiency of activities and medicines stock and waste management were taken pre- and post-implementation to identify changes to practice arising from the introduction of the application.Improvements in all measures were identified at both sites. The application supported the registration and management of 455 patients and a total of 565 consultations. Improvements in both time efficiency and medicines management were noted. Time taken to collect and report pharmaceuticals data was reduced from 7 days to 30 min and 10 days to 1 h at the urban hospice and rural hospital respectively. Stock expiration reduced from 3 to 0.5 % at the urban hospice and from 58 to 0 % at the rural hospital. Additional observations relating to the use of the application across the two sites are reported.A mHealth approach adopted in this study was shown to improve existing processes for patient record management, pharmacy forecasting and supply planning, procurement, and distribution of essential health commodities for palliative care services. An important next step will be to identify where and how such mHealth approaches can be implemented more widely to improve pharmaceutical systems for palliative care services in resource limited settings.
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    United against cancer: prevention to end-of-life care—highlights from the Uganda Cancer Institute–Palliative Care Association of Uganda Joint International Conference on Cancer and Palliative Care and the 7th Palliative Care Conference, 24–25 August 2017, Kampala, Uganda
    (Ecancermedicalscience, 2017) Downing, Julia; Ddungu, Henry; Kiyange, Fatia; Batuli, Mwazi; Kafeero, James; Kebirungi, Harriet; Kiwanuka, Rose; Mugisha, Noleb; Mwebesa, Eddie; Mwesiga, Mark; Namukwaya, Elizabeth; Niyonzima, Nixon; Phipps, Warren; Orem, Jackson
    The Uganda Cancer Institute (UCI) and the Palliative Care Association of Uganda (PCAU) jointly hosted an international conference oncancer and palliative care in August 2017 in Kampala, Uganda. At the heart of the conference rested a common commitment to see patientcare improved across Uganda and the region. The theme – United Against Cancer: Prevention to End-of-Life Care – reflected this jointvision and the drive to remember that cancer care should include prevention, early diagnosis and screening, treatment, rehabilitation andpalliative care. The conference brought together 451 delegates from 17 countries. The key themes of the conference included: the importanceof the World Health Assembly Resolutions on Palliative Care (2014) and cancer care (2017); the need to develop a National CancerControl Programme; strategies for effective cancer diagnosis and treatment in low- and middle-income countries; advocacy, human rightsand access to essential medicines, including access to opioids and nurse prescribing; paediatric care; leadership and commitment; collaboration;resources (financial and human), the recognition that palliative care is not limited to cancer care and the importance of learningfrom each other. The conference also gave the opportunity to celebrate the 50th Anniversary of the UCI, with a celebration dinner attended by the Minister of Health and the US Ambassador. Participants reported that the conference was a forum that updated them in all aspects of cancer and palliative care, which challenged their knowledge, and was enlightening in terms of current treatment options for individuals with cancer. The benefits of having a joint conference were recognized, allowing for further networking between cancer and palliative care organizations. This conference, highlighting many developments in cancer and palliative care, served as a unique opportunity to bring people together and unite them in developing cancer and palliative care